Andrew Can Ski-Even with CP: Learn how a boy with a disABILITY finds a way to excel
Cerebral Palsy can’t slow Andrew down. See how he found skiing and how it changed his life. Follow his quest to become a U.S. Alpine Paralympian.
Website: www.facebook.com/#!/pages/Andrew-Can Ski/719432124783069
Being a Healthy Adult: How to Advocate for Your Health and Health Care
The Elizabeth M. Boggs Center on Developmental Disabilities has a new health care guide, designed to help adults with disabilities learn how to become effective advocates for their health and health care. The guide includes activities, worksheets and tips for communicating with health care providers. It also explains how to keep track of personal health information.
Contact: Kathy Roberson
CJ and the Angel Kids
The CJ and the Angel Kids book series describes the adventures of five “differently-abled” children who meet at summer camp and become friends. Each has “special abilities” such as cerebral palsy, Down syndrome, autism, dyslexia and stuttering. Working with other children at the camp, they solve mysteries and teach everyone about children with disabilities, bullying, obesity, dyslexia, autism, adoption and other issues kids may be dealing with.
Exceptional Parent Magazine
A family and professional site for the special needs community.
Owning a home is one of the most significant investments people will ever make. For those with disabilities, it is vital that they and their loved ones have access to the resources to make their homes livable and enjoyable.
The HUB of Southern California
The Hub is Southern California’s voice for the active wheelchair community. The colorful and entertaining monthly magazine celebrates this region’s large and diverse disability population with news, features and commentary. The Hub is engaging, thoughtful, playful and irreverent. The magazine is full of personality and rich with resources and connections. The Hub is the go-to resource to learn about assistive technology, the latest in mobility vehicles, mobility products, medical advances, legal rights, sports and recreation, relationships and dating, travel and much more.
Provides an on-line newsletter with IDEA news (cases, summit reports, findings on state implementation procedures, summer camps, etc.)
More than a Watchmaker
“More than a Watchmaker” is the autobiography of Rick Hohn, an amazingly accomplished man who was diagnosed at age 2 with cerebral palsy, which affects all four of his limbs and restricts his speech. The doctor who diagnosed Rick told his parents that despite his severe disabilities, he would be able to do anything — but make a watch. The doctor knew he had intelligence but lacked the fine-motor abilities to do intricate work. How true this has been!
Out of My Mind
Melody’s head is full of words and sentences. She is 11-years-old and has never spoken one single word. Melody has cerebral palsy and is trapped in a body that won’t do what she wants it to do. She is confined to a wheelchair, unable to move, walk, talk, feed and care for herself. Melody has a photographic mind and is a very smart. But no one knows that except Melody. No one knows that her favorite song is “Elvira.”
Play 2 Podium
Play 2 Podium is here to help youth discover their potential through adapted physical activities of all kinds. All kids should have the chance to PLAY, to reach their dreams and achieve their personal PODIUM.
Resources for families of children with special needs.
Shriners Hospital for Children-Transition/Publication List
Various publications for persons with disabilities including videos,dvds, websites and transition resources from Shriners Hospital for Children. Contact Shriners Hospital for Children for more information.
The HELP Guide
This publication is authoritative, comprehensive, extensively illustrated, colorful and engaging. The need for this publication is enormous, as CP is common throughout the world and no affordable management guide has been available to date.
The Special Edge
Letter with helpful tips on IEPs, etc.
The Special Life
The information you’ll find here will help you on a day-to-day basis, whether you live with a special needs child or are a teacher of someone with special needs, such as cerebral palsy, Down syndrome, autism or Aspergers syndrome.
Stretch and Strengthen for Rehabilitation and Development, by Bob Anderson
Stretch and Strenthen for Rehabilitation and Development will make it possible for those who are confined or limited in movement to become active again. This book is available on Amazon.
Stretching, 20th Anniversary Revised Edition by Bob Anderson
A great resource to design a stretching program for anyone with cerebral palsy. This book is available on Amazon.
The Ties That Bind
One Family’s Journey of Compassion with a Special Needs Child
by Dana DeRuvo Davis, R.N. and Jackson Davis
Disheartened at the extent of her young son’s medical troubles, Dana DeRuvoDavis set out to provide Nicholas with the best care possible. To do so, she arranged for the help of the loving caregiver Louise, who swept in and turned their family around. The Ties That Bind is a compelling memoir about two people with little in common coming together to care for a child with special needs while also raising two typical children. Through their shared experiences, an emotional bond was built that has stood the test of time. This family experienced the highs and lows of celebrations and emergencies and learned to overcome these difficulties as they bonded together to form an even larger, stronger family. Discover the passion of two mothers who were stretched to their limit in The Ties That Bind. Dana DeRuvo Davis and her son Jackson Davis have teamed up to write this emotionally moving story, which will inspire you to appreciate your own family and love with your whole heart.
Tools for Today and Tomorrow
The mission of the Tools for Today and Tomorrow program is to improve life’s journey for children with chronic illnesses or disabilities by providing information and support to the people who care for them.
Contact: Linda Kresnye
Phone: 216-229-5757, ext. 126
We Move Caring Notebook
A Care Notebook is a way to organize all of your medical information. Using a Care Notebook will make it easier to find and share important information with people who are part of your health care team.
Provides a free internet newsletter with legal updates and tips. The website also offers links to important cases and legislation and publications.