Publications
Being a Healthy Adult: How to Advocate for Your Health and Health Care
The Elizabeth M. Boggs Center on Developmental Disabilities has a new health care guide, designed to help adults with disabilities learn how to become effective advocates for their health and health care. The guide includes activities, worksheets and tips for communicating with health care providers. It also explains how to keep track of personal health information.
Contact: Kathy Roberson
Phone: 732-235-9317
E-mail: kathy.roberson@umdnj.edu
Website: http://rwjms.umdnj.edu/boggscenter/products/Product_Health.html
Exceptional Parent Magazine
A family and professional site for the special needs community.
Web: www.eparent.com
IDEA Practices
Provides an on-line newsletter with IDEA news (cases, summit reports, findings on state implementation procedures, summer camps, etc.)
Web: www.ideapractices.org
Play 2 Podium
Play 2 Podium is here to help youth discover their potential through adapted physical activities of all kinds. All kids should have the chance to PLAY, to reach their dreams and achieve their personal PODIUM.
Web: www.play2podium.com
Shriners Hospital for Children-Transition/Publication List
Various publications for persons with disabilities including videos,dvds, websites and transition resources from Shriners Hospital for Children. Contact Shriners Hospital for Children for more information.
Web: www.shrinershq.org/hospitals/main
The Special Edge
Letter with helpful tips on IEPs, etc.
Phone: 800-894-9744
The Special Life
The information you'll find here will help you on a day-to-day basis, whether you live with a special needs child or are a teacher of someone with special needs, such as cerebral palsy, Down syndrome, autism or Aspergers syndrome.
Web: www.thespeciallife.com/index.html
Stretch and Strengthen for Rehabilitation and Development, by Bob Anderson
Stretch and Strenthen for Rehabilitation and Development will make it possible for those who are confined or limited in movement to become active again. This book is available on Amazon.
Web: www.amazon.com
Stretching, 20th Anniversary Revised Edition by Bob Anderson
A great resource to design a stretching program for anyone with cerebral palsy. This book is available on Amazon.
Web: www.amazon.com
The Ties That Bind
One Family's Journey of Compassion with a Special Needs Child
by Dana DeRuvo Davis, R.N. and Jackson Davis
Disheartened at the extent of her young son's medical troubles, Dana DeRuvoDavis set out to provide Nicholas with the best care possible. To do so, she arranged for the help of the loving caregiver Louise, who swept in and turned their family around. The Ties That Bind is a compelling memoir about two people with little in common coming together to care for a child with special needs while also raising two typical children. Through their shared experiences, an emotional bond was built that has stood the test of time. This family experienced the highs and lows of celebrations and emergencies and learned to overcome these difficulties as they bonded together to form an even larger, stronger family. Discover the passion of two mothers who were stretched to their limit in The Ties That Bind. Dana DeRuvo Davis and her son Jackson Davis have teamed up to write this emotionally moving story, which will inspire you to appreciate your own family and love with your whole heart.
Web: http://www.tatepublishing.com/bookstore/book.php?w=978-1-61663-297-7
Tools for Today and Tomorrow
The mission of the Tools for Today and Tomorrow program is to improve life's journey for children with chronic illnesses or disabilities by providing information and support to the people who care for them.
Contact: Linda Kresnye
Phone: 216-229-5757, ext. 126
Email: lkresnye@ronaldhousecle.org
Web: www.toolsfortoday.org
We Move Caring Notebook
A Care Notebook is a way to organize all of your medical information. Using a Care Notebook will make it easier to find and share important information with people who are part of your health care team.
Website: www.wemove.org/downloads/CareNotebook.pdf
Wrights Law
Provides a free internet newsletter with legal updates and tips. The website also offers links to important cases and legislation and publications.
Web: www.wrightslaw.com
