Cerebral Palsy Center

Providing comprehensive care to children and adults.

Highlights

Every month we feature a story that is relevant to the Cerebral Palsy Center.

Please refer to the list below to read our “Case of the Month”:

Gift that inspire-A message from Dr. Henry Chambers
Dr. Chambers and his family become part of Rady Children’s Legacy Circle.
http://www.myvirtualpaper.com/doc/rady-childrens-hospital/cmag_spring2012_final/2012082801/#18

Carson’s story-For the love of baseball
Carson shares with us his love of baseball and how he makes it happen with spastic hemiplegia cerebral palsy. This video will truly inspire you.
https://docs.google.com/open?id=0B2_5p7U_kgbEeDFVNVFkaU1XUVE

Sports for the Disabled
Students with disabilities must be given a fair shot to play on a traditional sport team or own league, the Education Department says. This title IX US ruling can bring sweeping changes.
http://www.utsandiego.com/news/2013/jan/25/tp-sports-for-the-disabled-ordered/

Pointed in the Right Direction-Teenager with Cerebral Palsy wins Bronze
Katrina Schaber, Rady Children’s Cerebral Palsy patient, earned a bronze medal as the youngest entrant in open alpine skiing at the North American Paralympic Race Festival in British Columbia, Canada-January 2013.
http://www.utsandiego.com/news/2013/feb/13/tp-skiing-helped-point-her-in-the-right-direction/

Team Summit and Adaptive Adventures, Colorado, is taking skiing to the next level with a new adaptive ski team
Mau Thompson, Adaptive Ski Coach-Adaptive Adventures, has joined forces with Team Summit, Coach Erik Leirfallom, this year to deliver an inclusive adaptive program, where disabled athletes can train full-time alongside able-bodies peers. This is the first program in the nation to do so full time. Rady Children’s Hospital patient, Katrina Schaber, is a member of this program and actively pursuing a spot on the US Paralympic Alpine Ski Team.

Disabled Sport USA-New promotional video
Check out this video about the Disabled Sport USA (DSUSA) program. It will change the way you think about disabilities forever! The DSUSA program works with children and adults with cerebral palsy.
http://www.youtube.com/watch?v=tjZQwoR2Bkg&list=UUPjWuMe-kZ1I6iBKBiaC_oQ&feature=plcp

Youth adaptive skiers shredding with Disabled Sports USA!
Check out these great youth adaptive skiers! Adaptive sports at Disabled Sports USA-www.dsusa.org. This clip features some adaptive skiers with Cerebral Palsy.
http://www.youtube.com/watch?v=xFU9ojof0I4&feature=BFa&list=UUPjWuMe-kZ1I6iBKBiaC_oQ

Local teen with Cerebral Palsy overcomes challenges to win gold and is awarded scholarship from Challenege Athletes Foundation
Local San Diego ninth-grader Katrina Schaber overcame great odds to earn the distinction as the U.S. Junior National Gold Medalist for Slalom. Katrina was treated for cerebral palsy by Rady Children’s Dr. Hank Chambers, a specialist in cerebral palsy.
http://thecoastnews.com/2012/05/young-athlete-overcomes-challenges-to-win-gold/

Rollins College (Orlando, FL) graduate defies doctors in pursuit of degree
Florida women with Cerebral Palsy graduates summa cum laude from Rollins College in Orlando, Florida and plans on pursuing her graduate degree. See story below.
http://www.cfnews13.com/content/news/cfnews13/news/article.html/
content/news/articles/cfn/2012/5/14/rollins_college_grad.html?hpt=us_bn5

Local Wampler Foundation to host a Movie Premiere-All Families and our Patients are invited.
Steve Wampler of the Wampler Foundation invites you to a movie premiere. If you don't know or never heard of Stephen before, he is the first man with cerebral palsy to climb the largest rock face El Capitain in Yosemite national park. We are writing to inform anyone who is interested (staff, families, patients) to attend a sneak peak premier of his documentary film Wall, The Journey Up. Event is Tues Dec 13th at 4:00 located at Qualcomm communications- 5775 Morehouse Drive, Building N Auditorium, San Diego, CA 92121. To learn more about Steve and his foundation please visit www.rockonsteve.org.

Neighbors Give a Boy His Dream Home
A group of moms in New Jersey band to together to help a young boy with Cerebral Palsy. Visit the People Magazine website below to view this compelling story.
Web: http://www.people.com/people/archive/article/0,,20455983,00.html

A Band of Their Own
They'll Rock Your Socks Off! Meet the Gifted Musicians of Flame, a Nationally Touring Cover Band-With a Difference including a member with Cerebral Palsy. The members of Flame (flametheband.com), who named themselves after the Special Olympics torch, say their differences just make them rock harder. " They have played New York City's Apollo Theater, the Parthenon in Athens and the 2009 Special Olympics. Says Special Olympics head Tim Shriver: "They defy stereotypes. Visit the People Magazine website below to view this compelling story.
Web: http://www.people.com/people/archive/article/0,,20432939,00.html
 

Man with Cerebral Palsy Reaches Summit of El Capitan-Stephen Wampler Becomes First Person With Cerebral Palsy to Climb Mountain at Yosemite

Wampler, born with cerebral palsy and usually wheelchair-bound, became the first person with his disability to reach the top of El Capitan. With the help of two friends and a uniquely crafted climbing chair, Wampler pulled himself up the mountain four to six inches at a time. To view this amazing event please visit: 
http://abcnews.go.com/WN/stephen-wampler-cerebral-palsy-climbs-el-capitan-raise/story?id=11681750

Dr. Chambers (Medical Director of the Southern California CP Center) in HaitiDr. Chambers spent the first week of February in Haiti volunteering at the CRUDEM's Hopital Sacre Coeur in Milot in Northern Haiti after the earthquake
To view his photos: http://www.youtube.com/watch?v=ZHvzRqRP_EY

Dancing to Defy Expectations
Challes Reese, a 15-year-old with cerebral palsy, relies on a wheelchair for mobility. But she refuses to let her condition, which permanently impairs muscle control, destroy her dream of dancing.
Read more at  http://www.parade.com/news/our-towns/2010/0321-dubuque-iowa-dancing-to-defy-expectations.html.

The Amazing Art of Disabled Artists
Some of the best artists deal with disabilities in their everyday lives that the rest of can’t imagine living with, and they use art to communicate with the world. The results are often stunning. We’ve collected biographies and sample pieces from outstanding disabled artists, both famous and lesser-known. The artists below paint with their hands, their mouths and their feet. We hope that the artists in this post inspire your designs and make you look at adversity in any field as a surmountable obstacle.
Vew this amazing art at http://www.webdesignerdepot.com/2010/03/the-amazing-art-of-disabled-artists/.

Beach and Country Guild:
The Beach and Country Guild is a non-profit organization whose sole purpose is to raise money in support of United Cerebral Palsy San Diego with a spectacular single annual fundraising event. Please view the following website and YouTube video to learn more about the Beach and Country Guild and their annual fundraising event:
Website: www.beachandcountry.org

August 2009

National Sport Center for the Disabled-Padres Sport Camp: A free interactive camp which allows youths with any disability, either physical or developmental, to experience baseball first-hand was held in San Diego on August 21. This fun-filled day included instruction and skill development, use of equipment, games and prizes and end with a snack and tickets to a Padres game. Many of our local CP patients had the opportunity to attend this camp. Read what some participants had to say about the camp:

• Angelo: "I went to the Padres Baseball Clinic. It was cool! I got to meet Keith Bell. He is a Padres baseball player. He signed my glove. I played baseball, and I had fun. I played baseball with my doctors and nurses from
  Rady Children's Hospital. Everyone got baseball tickets to see the Padres game at Petco Park. I went to the game on Sunday."

• Katrina: "Hi my name is Katrina and I have cerebral palsy. In August I did a baseball camp for kids with disabilities. I am not very good at baseball but I tried my best. Getting to train with the Padres was an experience I will never forget . We got to learn how to pitch and hit a home run. At the end of the day I got free tickets to the next Padres game and a lunch box."

May 2009:

Local author story: Dana's Legacy. Triumph over tragedy is "Dana's Legacy" to the disabled. Gayle and Don Slate's first child was born with cerebral palsy. That tragic fact moved Gayle to write a new book called "Dana's Legacy - From Heartbreak to Healing." Read More.

April 2009:

• Hemet Grandmother's Request Leads To New Swing For Special Needs Kids At Public Park. A local grandmother gets a new swing installed at a public park for children with special needs, including her grandson.

• Local girl's special needs tricycle stolen. Read More.

December 2008:

The story continues: Stepping inside the ropes: Disabled golf fan gets unique access on PGA Tour journey - Featured in February 2008. A summary of DJ's journey on the PGA tour. Read More.

May 2008:

Abbey Curran is Miss Iowa USA 2008. Born with Cerebral Palsy, Abbey has dedicated her life to proving that no challenge or limitation is great enough to stop her from achieving her dreams.

April 2008:

DeeDee and Her Family: The following story reflects the experience of one individual who is receiving Medtronic ITB therapy (Intrathecal Baclofen Therapy) for the treatment of severe spasticity. Connecting Newsletter. Read More.

February 2008:

Stepping inside the ropes: Disabled golf fan gets unique access on PGA Tour journey - San Diego Union-Tribune. Read DJ's Blog here.

August 2007:

Physicians Using Botox To Help Ease Cerebral Palsy Effects -KGTV 10News. Read More.

December 2007:

Walking Tall: Teen endures surgeries, challenges of cerebral palsy in quest for excellence - San Diego Union-Tribune. Read More.