Josh

A new drug has had a dramatic impact on Joshua’s life. Read his inspiring story.

The Rady Children’s/University of California, San Diego Cystic Fibrosis Center, under the direction of Mark Pian, M.D., provides comprehensive care for children with cystic fibrosis and advanced research. The Center is accredited by the Cystic Fibrosis Foundation as a patient care, teaching, and research center and has been designated a Therapeutic Development Center for research of new treatments.

Inpatient care and home care services are available through the Hospital. Adult inpatient services (for people age 21 or older) are provided through the adult cystic fibrosis center at the University of California, San Diego.

Our multidisciplinary team includes:

  • Physician specialists
  • Nurse specialists
  • Respiratory care practitioners
  • Dietitians
  • Physical therapists
  • Social workers
  • Child life specialists
  • Pharmacists and home care specialists
  • Genetics counselors
  • Consulting specialists (such as gastroenterologists and otolaryngologists)

About Cystic Fibrosis

Cystic fibrosis is an inherited disease affecting 30,000 people of almost all races in the United States. In people with cystic fibrosis, glands in many parts of the body don’t handle salt and water normally. Glands in the lung plug airways with thick mucus causing chronic lung infections, inflammation, and breathing problems. Digestive enzymes secreted by the pancreas aren’t delivered to the intestines, and thick mucus in the intestines causes problems with growth and nutrition. Sweat glands in the skin lose too much salt causing problems with dehydration in hot weather.

Not all people with cystic fibrosis have all the usual signs and symptoms, and some are sicker than others when they are diagnosed. Most often, the disease is detected during infancy, but it can also be diagnosed in adults.