Our Rheumatology Program is part of the Childhood Arthritis & Rheumatology Research Alliance (CARRA), an organization of pediatric rheumatologists committed to advancing the health and quality of life of children with rheumatic diseases, and the Pediatric Rheumatology Collaborative Study Group (PRCSG), a consortium of pediatric rheumatology centers aimed at conducting high-quality clinical trials of therapeutic agents in children with rheumatic diseases.
Through these organizations, we participate in clinical research on new medications, new treatment strategies and quality of life studies.
Research Coordinator: Shane Blanchard
Active Clinical Trials
- Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry (ClinicalTrials.gov Identifier: NCT02418442)
Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions. https://www.clinicaltrials.gov/ct2/show/NCT02418442?term=CARRA&rank=2
- Genetic Ancestry Powered Studies in JIA (GAPS in JIA)
The purpose of this study is to look at genetic risk factors for developing juvenile idiopathic arthritis
Juvenile Myositis Pilot: Treatment and Outcomes in Active Skin Disease (JuMP to ACT): The purpose of this study is to look at the outcomes of patients with juvenile dermatomyositis with calcinosis or history of calcinosis.
- Lupus of Early Onset (LEO): The purpose of this study is to study potential genetic differences in patients with childhood lupus.