The Hemophilia and Thrombosis Treatment Center, directed by Hilda Ding, M.D., M.S. is one of more than 150 centers in the country specializing in the diagnosis and treatment of individuals with bleeding and clotting disorders. This multidisciplinary team-based approach currently serves >30,000 people with complex, serious and rare blood disorders. The Hemophilia and Thrombosis Center is part of a federally funded network of hemophilia treatment centers supported by the federal Maternal Child Health Bureau and Centers for Disease Control and Prevention.
Diagnosed with hemophilia at age 8, Henry lives a full and active life. Meet Henry.
Studies from the Centers for Disease Control show a 40 percent lower mortality (death) rate and a 60 percent lower hospitalization rate for patients receiving care at a federally designated hemophilia treatment center.
The Hemophilia and Thrombosis Center partners with Rady Children’s HomeCare to provide clotting factor at reduced cost through the 340B Drug Program, which supports the services that we provide to patients with hemophilia and other bleeding disorders. To learn more about the program, watch the video at https://www.youtube.com/watch?v=WbpSggJzeik.
Comprehensive Care
Healthcare professionals in our center provide comprehensive care for approximately 500 children in San Diego and the surrounding area with hemophilia, von Willebrand disease, rare factor deficiencies, and platelet disorders, as well as those with clotting disorders. For more information, read our frequently asked questions.)
As we believe that a family-centered, comprehensive treatment approach is essential to providing the highest quality care, we have a multidisciplinary team that includes board-certified hematology/oncology physicians with additional subspecialty training in bleeding and clotting disorders, nurse practitioners, nurses, social workers, geneticists, psychologists, child life specialists, dietitians and physical therapists who specialize in the care of individuals with these rare blood disorders.
Social workers, child life specialists, and clinical psychologists help address patients’ unique psychosocial needs. Geneticists are available to provide genetic counseling. Physical therapists help with the management and prevention of musculoskeletal injury involving bleeding and clotting disorders, and are proficient in musculoskeletal ultrasound as a non-invasive modality for diagnosis and follow-up. Our physical therapists and dieticians also help patients cultivate a healthy and active lifestyle via nutritional support and promoting physical fitness, with the goals of mental well-being and minimizing risks of chronic medical problems.
Additionally, our center collaborates with the Division of Obstetrics/Gynecology at UCSD to provide care for patients with bleeding and clotting disorders who menstruate. Since 2020, our joint Hematology-GYN clinic has addressed the unique needs of these patients to enhance the quality of life via minimizing risks of iron deficiency anemia, promoting reproductive health, and fostering health education.
Finally, since 2022, our Thrombosis Clinic has continued to address the needs of patients with clotting disorders and care for patients with post-thrombotic syndrome. Our goal is to empower patients to prevent future blood clots, improve quality of life by minimizing risks/adverse outcomes from post-thrombotic syndrome, and to educate patients on appropriate treatment with anticoagulation when needed.
Patient-Centered Research
In addition to comprehensive care, the Hemophilia and Thrombosis Center is active in clinical research, participating in national outcomes studies and data collection on major complications of hemophilia, including joint disease and bloodborne viruses. We are also involved in both investigator-initiated and industry-sponsored clinical trials on the latest and most promising therapies.
Education & Advocacy
The Peckham Center is working with the local Hemophilia Foundation chapter – the Hemophilia Association of San Diego – to continue to provide patient education and advocate for patients in our community with bleeding disorders.
In the News
- San Diego HTC Looks at Cardiovascular Disease in Young People with Hemophilia, National Hemophilia Foundation, features Courtney Thornburg, M.D., M.S.
- UC San Diego Health Joins National Clinical Trial on Hemophilia B Gene Therapy, EurekAlert, features Rady Children’s Hospital-San Diego.