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Rady Children's Specialists

Micrognathia Interventional Care

The NICU Micrognathia Interventional Care program evaluates patients with micrognathia from a wide range of causes.

Patients are evaluated for airway and feeding issues from the time of admission, with consultation from Otolaryngology, Plastic Surgery, Genetics and Occupational Therapy, to best tailor care to you child’s needs. With specialized airway and feeding evaluations, your child’s care is personalized to provide the best possible outcome with medical decision-making occurring with the family.

Team

Our multidisciplinary team consists of board-certified neonatologists, otolaryngologists, pediatric plastic surgeons, pediatric geneticists, pediatric occupational therapists, specially trained neonatal intensive care unit (NICU) nurses and neonatal nurse practitioners trained in craniofacial disorders, as well providers such as respiratory care therapists, palliative care specialists, social workers and lactation consultants.

Airway Evaluation

Patients in the NICU with micrognathia and airway issues are evaluated by Neonatology, Otolaryngology and Plastic Surgery. Testing and evaluation is customized for the infant, with surgical plans that include mandibular distraction, and in some cases, trachesotomy if needed. Our NICU staff with NICU nurses and occupational and physical therapists regularly care for infants with airway issues and are comfortable with their management.

Feeding Evaluation

All patients in the NICU are evaluated for feeding and swallowing through our Feeding and Swallowing Therapy Pathway involving Neonatology, Occupational Therapy and Otolaryngology. Specialized evaluation with feeding observation, fluoroscopic dysphagia studies and fiberoptic evaluation of swallowing (FEES) can be performed based on your child’s needs.

Conditions Treated

The conditions we treat include:

  • Isolated micognathia and those associated with other anomalies and genetic disorders
  • CHARGE association
  • Pierre Robin sequence
  • Stickler syndrome
  • Tongue-based airway obstruction
  • Treacher Collins syndrome
  • Velocardiofacial syndrome