COVID-19 Updates: Latest Information for Parents

Cerebral Palsy Center

General

Abilities Expo
Abilities Expo is the leading event for 54 million Americans with disabilities, their caregivers and health care professionals to receive education and view the latest life-altering technologies, products and services. Under new management in 2009, this three-day expo will now have even more to offer the community.
Website: www.abilitiesexpo.com

Able-Disabled Advocacy
Able-Disabled Advocacy (A-DA) is a non-profit organization founded in 1975 that provides employment and training services to individuals with all types of disabilities and other barriers to employment. Able-Disabled Advocacy’s mission is “to provide vocational skills training and educational advancement for youth and adults with disabilities and to assist them in finding employment and overcoming barriers to personal and financial self-sufficiency.”
Phone: 619-231-5990
Website: www.able2work.org

AMBUCS
AMBUCS™ is dedicated to creating mobility and independence for people with disabilities by performing community service, providing AmTryke® therapeutic tricycles to children with disabilities and providing scholarships for therapists.
Website: www.ambucs.org

American Academy of Cerebral Palsy and Developmental Medicine
The American Academy for Cerebral Palsy and Developmental Medicine is a multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities. A reading list is available on line for parents.
Website: www.aacpdm.org

ARC of San Diego
The Arc of San Diego empowers persons with disabilities and their families by working in partnership to create opportunities to achieve their individual goals within the community.
Contact Person: John McKee
Phone: 858-715-3780
Website: www.arc-sd.com

Beach and Country Guild
The Beach and Country Guild is a non-profit organization whose sole purpose is to raise money in support of United Cerebral Palsy San Diego with a spectacular single annual fundraising event. Please view the following website and YouTube video to learn more about the Beach and Country Guild and their annual fundraising event:
Website: www.beachandcountry.org

California Children Services Medical Therapy Program (CCS MTP)
The Medical Therapy Program (MTP) is a special program within California Children Services that provides occupational therapy and physical therapy for children with eligible conditions. Therapy services are provided at rehabilitation units located in six public schools throughout San Diego County. These units are called Medical Therapy Units. Eligible conditions that qualify a child for the Medical Therapy Program services include, but are not limited to, cerebral palsy, spina bifida, muscular dystrophy, rheumatoid arthritis, spinal cord injuries, arthrogryposis, and osteogenesis imperfecta. For more information on medical eligibility for the Medical Therapy Program, please call the number below or visit the website.
Phone: 619-528-4000
Website: www.sandiegocounty.gov/content/sdc/hhsa/programs/phs/california_children_services/medical_therapy_program.html

California State Parks
California State Parks offer 50 percent discounts or free entrance to disabled persons and their entire party. There is a $3.50 fee, but the card is a lifetime membership.
Website: http://www.parks.ca.gov

Caroline’s Cart
Caroline’s Cart is a shopping cart created for special needs children. It provides parents and caregivers a viable option to transport a child through a store while grocery shopping, without having the difficult task of having to maneuver a wheelchair and a traditional grocery cart at the same time.
Website: http://www.carolinescart.com

Cecily’s Closet
Cecily’s Closet is a San Diego based nonprofit created with the simple premise of spreading stories of hope, love and encouragement to children with special needs and their families. We strive to provide awareness for early intervention services, local and government programs, and access to equipment for children with disabilities. Through collaboration with local designers, agencies, businesses, friends and family, we provide children with special needs clothes, toys and sweet dream room makeovers.
Website: www.cecilyscloset.org

Centers for Disease Control and Prevention (CDC)
This website has useful information about cerebral palsy.
Website: www.cdc.gov/ncbddd/cp/index.html

Cerebral Palsy Foundation
The Cerebral Palsy Foundation’s process is to find, define and address Moments of Impact – the times at which interventions and insights, if properly implemented, have the power to improve lives. The organization then works to better understand what is needed to effect change and the best ways to implement it. Its Collaborative Networks bring together many of the country’s most prestigious medical institutions, as well as innovative thinkers in diverse areas such as technology and media, in order to accelerate not only the development of critical advances, but also their delivery.
Website: http://yourcpf.org

Cerebral Palsy Now
Cerebral Palsy Now creates educational resources, initiates wellness campaigns and funds research focused on addressing the early problems in brain development that can lead to cerebral palsy. The organization also highlights and supports research for associated conditions that may interfere with learning or participation in society. Together with cerebral palsy centers, clinicians, researchers and the cerebral palsy community, it will work to advance neurological recovery, wellness and lifelong support for people with cerebral palsy. Check out the CP Diagnosis Tool Kit.
Website: https://cpnowfoundation.org

Children’s Disability Information
Articles and resources empowering parents of children with disabilities and special needs.
Website: www.childrensdisabilities.info

Coach Art
CoachArt creates a transformative arts and athletics community for families impacted by childhood chronic illness.
Website: http://coachart.org

Commit to Inclusion
The Guidelines for Disability Inclusion and its resources can be used by any entity including government, private, and non-profit organizations to ensure new and existing program initiatives and policies in the areas of physical activity, nutrition, and obesity are appropriate and accessible for people with disability.
Website: http://committoinclusion.org/9-guidelines-for-disability-inclusion

Costco Connection Article — More Than Able: Measuring Progress in the Disabled Sports Arena
http://www.costcoconnection.com/connection/201305#pg45

CP Collaborative
The Cerebral Palsy Collaborative provides a unified voice of cerebral palsy-related organizations to strategically affect mutually agreed upon research, education, awareness, support and public policy initiatives for the benefit of individuals with cerebral palsy across their lifespans.
Website: http://www.cpcollaborative.net

Department of Rehabilitation
The San Diego District of the Department of Rehabilitation serves people with disabilities in all of San Diego County and Southern Orange County. With offices in North, East, Metro and South Counties, there is an office close to every major population center. The San Diego District supports the overall mission of the Department, and has developed our own specific vision statement as well.

Our vision reads: “The San Diego District of the Department of Rehabilitation will be the lead agency in the provision of services to people with disabilities in the community. We will be an integral, invaluable partner with other agencies in our area that are committed to increasing employment opportunities and outcomes for people with disabilities. Our staff will be dedicated to our mission, and empowered to positively affect the lives of our consumers.

In partnership with our consumers, we will develop and implement plans which result in employment outcomes consistent with the unique interest, abilities and priorities of those we serve. Trust, kindness, respect, creativity, a commitment to excellence and the exercise of professional judgment will mark our work environment.
Website: www.rehab.cahwnet.gov/sandiego

DMV/Disabled Parking Pass
You can download an application at http://www.dmv.ca.gov/forms/reg/reg195.pdf or visit your DMV office for an application. NOTE: This requires a doctor’s signature.

Dystonia Foundation
The Foundation provides information on dystonia, treatment options, support services, healthcare referrals and research programs for dystonia patients and there families.
Phone: 312-755-0198
Website: www.dystonia-foundation.org

Easter Seals of San Diego County
Easter Seals provides exceptional services to ensure that all people with disabilities or other special needs and their families have equal opportunities to live, learn, work and play in their communities.
Phone:
El Centro Adult Day Center: 760-482-2777
North San Diego County Services & Administration: 760-737-3990
South San Diego County Services: 619-336-0630
Website: southerncal.easterseals.com

European Academy of Childhood Disability
Our aim is to ensure the development of high-quality research and teaching in the field of childhood disability; improve the care these children receive; and to raise professional standards throughout Europe.
Email: secretary@eacd.org
Web: www.eacd.org

Exceptional Parent
Exceptional Parent provides information, support, ideas, encouragement ,and outreach for parents and families of children with disabilities and the professionals who work with them.
Phone: 877-372-7368
Website: www.eparent.com

Exceptional Family Resource Center
The mission of the Exceptional Family Resource Center is to provide support, information and education for families of children with disabilities and the professionals who assist these families. This website has a wonderful listing of summer camps for children with disabilities.
Contact: Diane
Phone: 619-594-7416 or 800-281-8252
Website: www.efrconline.org

Expressive Arts
Expressive Arts is a discipline of helping and healing that uses the arts as its basis for discovery and change. All five disciplines of the arts: visual, dance/movement, music, drama/theater, and writing/poetry can give you a richer vocabulary to work, play and grow a life you love living.
Website: http://expressiveartssandiego.com

GotTransition
Wonderful website for students with disabilities and health issues, their families and health care providers with information on issues that may make going to college more challenging. Also offers video training to assist in the preparation process.
Website: www.gottransition.org

Gracie’s Gowns
Being in the hospital is no fun to begin with, but what makes the stay even worse is having to wear a ratty, worn-out gown or a gown that is too small or way too big. Gracie’s hospital gowns are designed to be fun, attractive, and functional.
Website: http://www.graciesgowns.org

Home of Guiding Hands
Home of Guiding Hands encourages individuals to dream and pursue fulfillment. This is accomplished by offering many living choices so that people can direct their own lives by choosing the housing arrangement or services that best suits their needs. Home of Guiding Hands also offers a free support group for parents of children with developmental disabilities on Fridays in El Cajon. Please contact them for details.
Website: http://www.guidinghands.org

Icing Smiles
Icing Smiles is a nonprofit organization that provides custom celebration cakes and other treats to families impacted by the critical illness of a child. We understand that the simple things, like a birthday cake, are luxuries to a family battling illness. Our goal is to create a custom cake for the ill child, or their sibling, that provides a temporary escape from worry and creates a positive memory during a difficult time.
Website: www.icingsmiles.org

Legal Aid Society of San Diego, Inc. Pro Bono Program-CONSERVATORSHIP CLINIC
A free clinic is open to members of the public who need assistance in a conservatorship of the person action or information about alternatives to conservatorship. A legal aid representative will provide community education to clinic participants individually on a first come, first served basis.
Offered Monday from 11:30 to 3 p.m., Tuesday & Thursday from 8:30 a.m. to noon.
Probate Courthouse, Fifth Floor, 1409 Fourth Avenue.
Website: http://www.lassd.org

Magic Wheelchair
Magic Wheelchair is a nonprofit organization that makes “epic” costumes for children in wheelchairs, at no expense to their families.
Website: http://www.magicwheelchair.org

Medical Waiver Program
Some children with medical issues will qualify for state medical assistance to help pay for prescriptions, medical bills, etc. Although you must report your income, income will not prevent your child from otherwise being eligible. Call Roy Carrol at San Diego Regional Center 858-576-2996. (He will start the Medical Waiver for your child and reclassify their status.) MediCal enables you to use this as a secondary insurance (or primary, if needed). You will not be charged any co-pay for prescriptions, office visits, therapies or hospital stays once you are on MediCal. MediCal starts the day of application.

Merlin’s Magic Wand
Merlin’s Magic Wand is a worldwide charity for children, aiming to provide magical experiences for those who are seriously ill, disabled or disadvantaged.
Website: www.merlinsmagicwand.org

Morgan’s Wonderland
When it celebrated its grand opening on April 10, 2010, Morgan’s Wonderland became the world’s first theme park designed with special-needs individuals in mind and built for everyone’s enjoyment. The completely wheelchair-accessible park features more than 25 elements including rides, playgrounds and other colorful attractions. From the very beginning, anyone with a special need has been admitted free of charge, no questions asked.
Website: http://www.morganswonderland.com

MORGAN Project
The M.O.R.G.A.N. Project is a national, community-based organization of volunteers whose mission is to promote awareness and facilitate support of parents caring for their children with special health care needs, and to enhance the quality of life for these special families.
Phone: 321-506-2707
Email: info@themorganproject.org
Website: www.themorganproject.org

MOVE (Mobility Opportunities Via Education)® helps children and MOVE (Mobility Opportunities Via Experience)® helps adults with disabilities:
1. Acquire increased independence in sitting, standing and walking,
2. Learn and gain more mobility, and
3. Experience better health and enhanced personal dignity.
Phone: 800-397-MOVE (6683)
Website: www.move-international.org/about

National Institute of Neurological Disorders and Stroke
Information and resources related to cerebral palsy.
Web: www.ninds.nih.gov/disorders/cerebral_palsy/cerebral_palsy.htm

National Information Center for Children and Youth with Disabilities
Offers briefing and fact research papers on disabilities, public agencies fact sheets, state resource sheets and lists of national resources. Serves the nation as a central source of information on:

  • Disabilities in infants, toddlers, children and youth,
  • IDEA, which is the law authorizing special education, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.

Phone: 800-695-0285
Website: www.nichcy.org

National Parks
America the Beautiful – Access Pass – Free.
This is a lifetime pass for U.S. citizens or permanent residents with permanent disabilities. The pass provides access to and use of Federal recreation sites that charge an entrance fee or standard amenity. Documentation is required to obtain the pass. Acceptable documentation includes a statement by a licensed physician; a document issued by a Federal agency, such as the Veteran’s Administration, Social Security Disability Income or Supplemental Security Income; or a document issued by a state agency, such as a vocational rehabilitation agency. A local San Diego National Park is Cabrillo National Monument.
Website: http://www.nps.gov

North County Family Resource Center
Oceanside, 1315 Union Plaza Court, Oceanside, CA 92054, 760-754-5757
Escondido, 463 N. Midway Dr., Escondido, CA 92025, 760-739-6060.

SDG&E (San Diego Gas & Electric Company)
SDG&E offers a medical base line for energy usage for qualifying consumers. Qualifying consumers must have a medical condition requiring energy usage, such as nebulizer for asthma, air filters for allergies, and air conditioning for heart problems or heat exhaustion. There is also a part on the application that offers a discount of gas for medical conditions.
Website: www.sdge.com

San Diego Regional Center
The San Diego Regional Center (SDRC) serves as a focal point in the community through which a person with a developmental disability and his or her family can obtain services and be linked to other community resources within San Diego and Imperial counties.
Phone: 858-576-2938
Website: www.sdrc.org

Sharp Healthcare Rehabilitation Services
Sharp Healthcare Rehabilitation Services has a number of resources available in support of a active lifestyles, including support groups, exercise programs, field trips, a newsletter, adaptive driving program and community resources.
Website: www.sharp.com/rehab

Special Needs Resource Foundation of San Diego
The foundation’s mission is to help parents. It advocates in the special needs community by bringing together people, information and resources.
Website: http://specialneedsresourcefoundationofsandiego.org

St. Madeleine Sophie’s Center
We are an incomparable organization that serves adults with developmental disabilities. Our reputation for excellence rests on a foundation of high-quality programming and well-trained staff. The mission of St. Madeleine Sophie’s Center is to empower adults with developmental disabilities to discover, experience and realize their full potential as members of the greater community.
Phone: 619-442-5129, ext. 3332
Website: www.stmsc.org

Starlight Children’s Foundation
Starlight has maintained its leadership in helping families with hospitalized children cope with the challenges of a medical journey through programs such as Starbright World®, the first-ever online social network for teens with chronic and life-threatening medical conditions and their siblings, and the newly debuted Starlight Wish Lists, a cutting edge technology platform that enables donors to fill specific unmet hospital needs directly and efficiently.For more than 30 years, Starlight has been a leading global charity improving the life and health of kids and families. We partner with experts and innovators in healthcare, entertainment and technology to create a unique blend of family-centered services from hospital to home.
Website: www.starlight.org/about 

Stephen J. Wampler Foundation
The Stephen J. Wampler Foundation was established by Steve Wampler to give children with physical disabilities the kinds of outdoor wilderness experiences Steve was fortunate to have as a child at at Camp Nejedly located at Hawley Lake.
Website: www.wamplerfoundation.org

TASH
TASH is an organization of members concerned with human dignity, civil rights, education and independence for all individuals with disabilities.
Website: www.tash.org

TASK-Team of Advocates for Special Kids
Team of Advocates for Special Kids (TASK) is a nonprofit charitable organization whose mission is to enable individuals with disabilities to reach their maximum potential by providing them, their families and the professionals who serve them with training, support, information, resources and referrals, and by providing community awareness programs.

Initially, the primary focus was on children three to 21 years of age, but services evolved to include all ages, especially in the TASK Technology Center. TASK serves families of children aged birth to 26 years of age under IDEA and other systems mandated to provide services to individuals with disabilities. As a federally-funded Parent Training and Information Center, TASK is part of a national network of centers providing similar services. TASK provides advocacy information, workshops and information in English, Spanish and Vietnamese.
Phone: 877-609-3218 (toll-free in California) or 619-282-0846
E-mail: task@taskca.org
Website: www.taskca.org

TERI, INC.
TERI specializes in serving individuals who have needs which cannot be met by other existing programs, including services to persons who have profound mental retardation, cerebral palsy, epilepsy, autism, brain trauma, severe behavioral disorders, dual diagnoses and learning disabilities.
Phone: 760-721-1706
Website: www.teriinc.org

tHAIRapy Hair Salon
tHAIRapy Hair Salon is a family salon specializing in and catering to our clientele with AUTISM and SPECIAL NEEDS. From our sensory wall, to our wheelchair accessible shampoo bowl & station, to our specially trained therapy dog arriving in December. We are continuously striving to offer the best of the best to each and every one of our clients. tHAIRapy Hair Salon is here to change the way parents and kids feel about haircut day.
Website: http://www.thairapyhairsalon.com

The Amazing Art of Disabled Artists
Some of the best artists deal with disabilities in their everyday lives that the rest of can’t imagine living with, and they use art to communicate with the world. The results are often stunning. We’ve collected biographies and sample pieces from outstanding disabled artists, both famous and lesser-known. The artists below paint with their hands, their mouths and their feet. We hope that the artists in this post inspire your designs and make you look at adversity in any field as a surmountable obstacle.
View this amazing art at http://www.webdesignerdepot.com/2010/03/the-amazing-art-of-disabled-artists/.

Together We Grow
Together We Grow is the recognized leader in pediatric care, the place where medically fragile and typical children grow together in an inclusive environment. In a developmentally appropriate setting, these children play and learn together, focusing on fun and learning activities.
Phone: 760-757-6031 (Oceanside) and 858-751-0209 (San Diego)
Website: www.togetherwegrow.net

United Cerebral Palsy of San Diego County
United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability.
Contact: Rhonda Van Ekelenburg
Phone: 858-571-7803
Website: www.ucp.org or local program website: www.ucpsd.org
Offices are located throughout the United States.

UpforCause
UpforCause is a 501c approved nonprofit organization, supporting families with special needs in greater San Diego. Our Mission is ‘Triple E”:  Educate – families, Empower – individuals, Engage – community.  UPforCause offers various educational, recreational services to individuals with special needs and their families inculcating  ‘ancient wisdom of east’  to provide an excellent pool of services to best serve individuals with special challenges and their families.
Website: http://www.upforcause.org/home

Western Wishes
Western Wishes has turned dreams into lasting memories for countless kids faced with adversity and who love the western way of life.This award-winning program rewards kids for their fighting spirit and communicates their stories of courage, faith and determination to get back in the saddle again. Western Wishes has created a program to put these inspiring kids in the spotlight, if just for a moment, and encourages them to reach for the stars and have their dreams come true.
Website: http://www.westernwishes.org

Wylie Center
Wylie Center serves over 450 children, youth, and families each year in the Inland Empire. The center provides high quality educational programs and therapeutic services to meet the needs, goals and hopes of individuals with special learning, emotional and developmental needs.
Website: http://wyliecenter.org

Xcite Steps-Mentorship/Sport/Social and Summer Camp Program
Contact: Matt Winkley
Phone: 858-722-1948
Website: www.exciteway.com