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Rady Children's Specialists

Heart Institute

Single Ventricle Program

The Single Ventricle Program is for children who are born with only one pumping chamber (single ventricle) in their heart, instead of the usual two.

A broad range of congenital cardiac conditions are associated with having a single ventricle, including

Children born with single ventricle congenital heart defects have a series of operations during childhood, including Norwood, Glenn and Fontan operations. Specific complications that need to be monitored include ventricular dysfunction, atrioventricular valve regurgitation, arrhythmia, cyanosis, thrombosis, protein-losing enteropathy and plastic bronchitis. Liver fibrosis and renal dysfunction are common and may progress over time, and cognitive, neuropsychological and behavioral deficits are also highly prevalent.

Our program seeks to improve survival and quality of life for children and young adults with single ventricle physiology. We seek to educate parents regarding the care of their child and provide resources.

This program provides comprehensive and interdisciplinary care, screening, evaluation and coordinated care, and referrals for the following areas:

Team

Cardiology

Jose Alfonso Silva Sepulveda, M.D., Director, Single Ventricle Program and Transitional Program, Assistant Clinical Professor of Pediatrics, UC San Diego

Howaida El-Said, M.D., Ph.D., Director, Cardiac Catheterization Laboratory; Clinical Professor of Pediatrics, UC San Diego

Shylah Haldeman, M.S.N., N.P.-C, CCTC

Jessica Haley, M.D., Director, Home Monitoring Program; Assistant Clinical Professor of Pediatrics, UC San Diego

Gabrielle Vaughn, M.D., Heart Failure/Heart Transplant,; Assistant Clinical Professor of Pediatrics, UC San Diego

Matthew Williams, M.D., Director, Cardiac Pacing; Clinical Assistant Professor of Pediatrics, UC San Diego

Cardiothoracic Surgery 

John J. Nigro, M.D., Division Chief; Director, Heart Institute; Director, Cardiac Transplantation and Ventricular Assist Device Program

John Artrip, M.D., FRACS, Assistant Professor of Surgery, UC San Diego

Endocrinology

Michael Gottschalk, M.D., Ph.D., Division Chief; Associate Director, Pediatric Diabetes Research Center; Clinical Professor of Pediatrics, UC San Diego

Gastroenterology

Kathleen Schwarz, M.D., M.P.H., Associate Physician Diplomate, UC San Diego

Gynecology

Akilah Weber, M.D., Associate Physician, UC San Diego

Nephrology

Caitlin Carter, M.D.

Pulmonology

Aparna Rao, M.D., Associate Clinical Professor of Pediatrics, UC San Diego

Other team members include a neurodevelopmental practitioner, social workers and registered dietitian.

Resources

National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC): Patient and Family Resources
https://npcqic.org/resources-parents-and-families

Locations

Rady Children’s Hospital-San Diego (Map it)
Rose Pavilion, 1st Floor South
3020 Children’s Way
San Diego, CA 92120
Phone: 858-966-5855
Fax: 858-966-7903

Contact Us

For more information about the program and other cardiology services, contact the Cardiology division at 858-966-5855.