The Rett syndrome multidisciplinary clinic aims to provide comprehensive care for patients with a diagnosis of this neurological condition. Learn about Rett syndrome.

We screen patients regularly for Rett-specific health conditions and help with the management of the multiple organ system issues that can arise across patients’  lifespans. We work with a dedicated nurse to facilitate communication with our patients’ families between clinic visits and follow-up on equipment, medications and subspecialty care referrals as needed.

Our goal is to maximize quality of life for our patients. We also have the ability to connect families who are eligible and interested in learning more about the clinical trials we have available.

Team

Richard Haas, M.D., Neurologist

Natalie Guido-Estrada, M.D., Neurologist

Susan Biffl, M.D., Rehabilitation/Physical Medicine Specialist

Kyle Ryan, M.D., Rehabilitation/Physical Medicine Specialist

Jenna Stromsoe, Nurse

Jazlyn Alameda  Social Worker